For the last few years, scientists and doctors have been doing stem cell research to try to find a cure for optic nerve hypoplasia.They have treated a few hundred patients..some successful, some successful over time, and with no success. I feel right now medical advancements are happening at such a rapid rate, by the time Mason is old enough for us to know more about the severity of his ONH, we will have stem cell transplant as an option. The cost of the procedure is about $20,000, and is only done in China right now. I hope to begin fundraising to raise money for Mason to one day undergo this treatment if he needs.
http://beikeinfocenter.com/treatment-information-hub/disease-specific-info/visual-impairment/
My son,Mason,was diagnosed with ONH(optic nerve hypoplasia)at 5 months. ?ONH? Underdeveloped optic nerves,resulting in impaired to no vision,and possible hormone deficiencies, developmental delay, and brain malformations I want to create awareness and support for him,& all other children and their loved ones. Never forget to always be positive,never lose hope,there is always a BRIGHT SIDE,& where there is love there is life.
Saturday, March 19, 2011
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment