My son,Mason,was diagnosed with ONH(optic nerve hypoplasia)at 5 months. ?ONH? Underdeveloped optic nerves,resulting in impaired to no vision,and possible hormone deficiencies, developmental delay, and brain malformations I want to create awareness and support for him,& all other children and their loved ones. Never forget to always be positive,never lose hope,there is always a BRIGHT SIDE,& where there is love there is life.
Showing posts with label vision therapy. Show all posts
Showing posts with label vision therapy. Show all posts
Thursday, April 7, 2011
VISION THERAPY SESH
Today Mason had his vision therapy, and he did great! We did more tactile activities, and we are seeing improvements every week! I am realizing that Mason is very sensitive to too much stimulation. Today he blasted, as in a tsunami of vomit. That was the first time that ever happened, but I believe there was just too much going on and he ate too fast and everything just came back. But, like always, Mas was completely unaffected by the event, and he just carried on with his happy self. I think he has pockets of vision, sometimes he seems to respond in certain areas of his eye, and I think it's more peripheral. Anyway, only time will tell. That's all for today.
Monday, March 28, 2011
Mason's therapy was great. This week was a lot of tactile stimulation, feeling different textures and things of the sort. Mas loved it. He definitely gets a little over stimulated after awhile, and he will let you know! We were told we really need to work on him rolling over, but he really doesn't seem to like it. He's more into standing..he loves to stand up, and he LOVES to jump in his jumper. He is hilarious! Well that's it for now! We have a busy week ahead of evaluations and doctors. Happy Monday!
Wednesday, March 23, 2011
Tomorrow is Mason's third therapy session, I am excited to see how it goes! A few days ago we received the MRI results, and well I guess most everything is still a waiting game. Mason's pediatrician informed us the cyst on his brain was slightly bigger, and we will be seeing his neurosurgeon next week to review that. On Monday, April 4, we will be meeting with the endocrinologist to review his pituitary, and hormones. Luckily, the blood work results showed his hormone levels were mostly normal, and there were no comments on the pituitary gland. All in all, a positive review of the MRI. We'll be keeping you posted!
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