Many children with ONH/SOD have problems with their hypothalamus gland which controls sleep and appetite and temperature to name a few of it's functions. Some of our kids don't sleep well, (another understatement!) and some kids have problems regulating there temps causing hypo and hyper thermia,and some kids have to be told when they have had enough to eat. Some of the children have or develop seizures and are on medication for them. Some are hypotonic (low muscle tone) at birth, requiring p.t. (physical therapy), o.t. (occupational therapy). Many children with ONH/SOD also have Sensory Integration Disorder, most are tactilely and orally defensive, and some have hypersensitivity to sound. We, as parents, have also noticed obsessive behavior in some of our children. They tend to ask questions over and over even after answered, obsess on the same subject for long periods of time, and become very upset when routine is interfered with. Lots of them also chew on their finger. It is also reported by some parents that their children fall into the autistic spectrum category. Many of our children also have gifted areas particularly in music. Many of the children have incredible memories and have incredible strength. Most of our kids are developmentally delayed either due to lack of vision or neurological problems, or being diagnosed with hypothyroid too late. It is imperative that all children with ONH/SOD be seen by a endocrinologist immediately upon diagnosis with follow ups.
http://www.focusfamilies.org/focus/characteristics.asp
No comments:
Post a Comment