My son,Mason,was diagnosed with ONH(optic nerve hypoplasia)at 5 months. ?ONH? Underdeveloped optic nerves,resulting in impaired to no vision,and possible hormone deficiencies, developmental delay, and brain malformations I want to create awareness and support for him,& all other children and their loved ones. Never forget to always be positive,never lose hope,there is always a BRIGHT SIDE,& where there is love there is life.
Wednesday, April 20, 2011
UPDATE:
CRAZINESS! So, Mason is falling behind on his milestones..he is 7 1/2 months..he's not sitting, not rolling, not pushing up, and having a hard time to keep his head up. He is also much more active with his left side than his right.. but good news, we have finally been approved for Mason to start some different therapy sessions! He will have physical therapy Monday and Thursday, occupational therapy on Wednesday, see his infant specialist Thursday before physical therapy, and on Friday mornings, I am so excited to start attending the mommy and me sensory group! Aside from his therapies, we have been doing intense exercise at home, and have noticed a huge difference! As exhausting as it is, it is much more rewarding seeing him grow and change everyday! In between all of this I am still maintaining my 3 days of work a week, working 6am-2pm for health insurance to assure Mason is well taken care of. I am so excited the t-shirts finally arrived!! That's going great, it will help to pay for his physical therapy twice a week. Besides that, we are excited for his 5k Walk>Independance for Blind Children's Learning Center on May 14! Oh and by the way..My god, I swear Mason gets cuter and happier by the minute! I love that little boy to pieces!
Labels:
update
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment