Here is another great website I just found. Mason was born with an arachnoid cyst on his brain, which the doctors said was completely unrelated with the ONH. Here it says differently. Lesson learned. Never take a doctor's words 100% to heart, dig for your own answers, because not even they know everything.
http://www.focusfamilies.org/focus/library/faq.asp
My son,Mason,was diagnosed with ONH(optic nerve hypoplasia)at 5 months. ?ONH? Underdeveloped optic nerves,resulting in impaired to no vision,and possible hormone deficiencies, developmental delay, and brain malformations I want to create awareness and support for him,& all other children and their loved ones. Never forget to always be positive,never lose hope,there is always a BRIGHT SIDE,& where there is love there is life.
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Hey Mason! Here is your cousin from Brasil, Bárbara! I really like your mom's blog!
ReplyDeleteAnd yes, always do your own research, always...
beijos!