From the beginning Mason has been a warrior. He is absolutely amazing, and I can't wait to see what kinds of surprises he has in store for us!
Because of his ONH, he is a little bit slower at reaching his milestones..certain things such as rolling over, reaching for toys, crawling..things that you are usually visually stimulated to do. As of right now he is not reacting much to visual stimulation. We won't know what he sees until he is old enough to tell us. As far as any brain issues, we should have a better idea after the MRI results come back. Through the blood work, Mas' pediatritian said everything looks okay, but we will meet with an endocronologist(hormone specialist) in a couple weeks.
Every Thursday Mason meets with an infant specialist who does things with him to encourage any vision he may have, as well as tactile stimulation, toys and things with different textures. She works a lot with bumps and circles, to prepare him for braille, as well as noise makers, a light box, and other fun things. We've met with her twice now. The first time was more informative, and the second very interactive.
My son,Mason,was diagnosed with ONH(optic nerve hypoplasia)at 5 months. ?ONH? Underdeveloped optic nerves,resulting in impaired to no vision,and possible hormone deficiencies, developmental delay, and brain malformations I want to create awareness and support for him,& all other children and their loved ones. Never forget to always be positive,never lose hope,there is always a BRIGHT SIDE,& where there is love there is life.
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