My son,Mason,was diagnosed with ONH(optic nerve hypoplasia)at 5 months. ?ONH? Underdeveloped optic nerves,resulting in impaired to no vision,and possible hormone deficiencies, developmental delay, and brain malformations I want to create awareness and support for him,& all other children and their loved ones. Never forget to always be positive,never lose hope,there is always a BRIGHT SIDE,& where there is love there is life.
Thursday, March 31, 2011
Appointment with Neourosurgeon
Today Mason met with the neourosurgeon about his cyst. Everything seems to be okay. His cyst has gotten bigger, but so has his head. It is in a difficult spot to get to, so doctor doesn't want to do anything about it, unless it is absolutely necessary. We are to set up appointments to see a geneticist and a neurologist. Lots and lots of doctors. We are so blessed to live somewhere with such fantastic resources around us.
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