Here we are again at another 6 month mark. This means a month of follow up appointments with Mason's team of doctors, blood work and exams, evaluations to see his progress, and of course that oh so dreaded brain MRI, in addition to our already crazy, busy life. But anyway, it's all for the good of our amazing little man. As busy as the 6 month mark is, I do actually enjoy all the reports and evals. It's great to reflect back on our last goals and to see how much progress Mason has made.
We will have Mason's MRI on April 27th, and meet with his neurosurgeon most likely 2 weeks after. We have been waiting for this to aaproach to see the status of the cyst on Mason's brain, then we will determine whether brain surgery is necessary. Praying strong that the will have disappeared, and we will see an end to having these MRI's every 6 months. Either way, everything is in God's hands, and all we can do is pray that no matter what happens it will have a positive impact on Mason's life.
That is up and coming, we will keep you posted on Mason's progress :)
My son,Mason,was diagnosed with ONH(optic nerve hypoplasia)at 5 months. ?ONH? Underdeveloped optic nerves,resulting in impaired to no vision,and possible hormone deficiencies, developmental delay, and brain malformations I want to create awareness and support for him,& all other children and their loved ones. Never forget to always be positive,never lose hope,there is always a BRIGHT SIDE,& where there is love there is life.
You are a great inspiration and I am sending as many good thoughts as possible your way.
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